MyRealWorld MG (MRW MG) is an international study assessing the impact of Myasthenia Gravis on patients’ lives.
Working with patient organizations from 9 countries (US, Japan, Germany, UK, France, Italy, Spain, Canada, Belgium), biotechnology company argenx sponsors this innovative study.
Download the app today and share your Myasthenia Gravis journey to help researchers understand the impact and burden of MG on patients and their families.
The MyRealWorld MG study
- Is open to anyone diagnosed with Myasthenia Gravis, 18 years or older
- Includes regular questionnaires and surveys about your diagnosis, your symptoms, treatments, your activities, your quality of life,
- Includes a medical profile where you can record your treatment data.
Ethics and Data Privacy
MyRealWorld MG is approved by an Institutional Review Board in each country where it’s available. Your information is combined with that of the other participants and your identity is not revealed. Please read our data privacy notice for more information.
How do patients access and use the MyRealWorld MG app?
The MyRealWorld MG study app has been created in collaboration with patients and patient advocacy groups and clinical experts in order to help research in the MG field. Read more about our patient-centric co-creation
The app can be downloaded to your smartphone and allows you to monitor and record your well-being parameters, treatments and healthcare visits, and you can make a note of any repercussions you experience. The app also provides a convenient way for you to share your journey with friends, family and healthcare professionals if you’d like to.
Our digital platform was co-created with patients, patient advocacy groups and clinical experts. We hold regular patient feedback and testing sessions to find out how to improve user experience. We are always looking out for new features to add to the app to help people with MG better understand their condition.